Life Off-Grid Isn’t Always Easy
Sorry we’ve been a little quieter lately. Even our morning off-grid campfire chats — where we share experiences and try to help others considering this lifestyle — have been harder for me to keep up with. And I truly love helping people.
Off-grid life is raw, real, and full of lessons. It isn’t always easy, but it teaches resilience, patience, and the importance of community.
Brent’s Stroke Recovery and Our Journey
Many of you know that a year ago, Brent (Advocatus Diaboli) suffered a cluster of strokes. It’s been a long road back, but he’s doing it — and I couldn’t love him more.
His recovery has taught us the value of perseverance, hope, and celebrating small victories in life, especially while living off-grid.
My Health Struggles: Pituitary Macroadenoma
Recently, I’ve been experiencing intense headaches and eye pain. Doctors initially suspected trigeminal neuralgia and sent me to a neurologist. While the MRI didn’t show much for the nerve, it revealed a pituitary macroadenoma, a tumor on the pituitary gland.
About 90% of pituitary macroadenomas are benign, but they can still affect hormone function. This discovery led to more bloodwork, a referral to an endocrinologist, and additional testing. So far, results indicate my immune system may be attacking my thyroid, and my pituitary gland
Upcoming Tests and What They Mean
This week, I have a more detailed pituitary MRI and a thyroid ultrasound. After these tests, we’ll better understand my treatment plan. While the waiting is stressful, everything we know so far is treatable. Surgery may be necessary, but it is not overly invasive, according to doctors.
Life Lessons: Truthfulness and Positivity
I am not seeking attention — I’m trying to be truthful. Life off-grid isn’t easy. We don’t sugarcoat our experiences. We all face trauma, health issues, and personal struggles. Living off-grid doesn’t exempt us from that reality.
In a world full of negativity, we aim to offer a space of positivity — a place where you can be yourself. We don’t judge your sexuality, religion, or political views. Your life is yours to live.
We share more in our lives than on social media, and our goal is to help others while helping ourselves. These are just hurdles we have to jump (without breaking a leg, as I can’t jump 😅).
Finding Peace: Sunsets and Perspective
When life throws you a curveball, stop, take a breath, watch the sunset, and enjoy the moment. These reflective pauses help us find clarity and peace, even in the midst of health challenges and uncertainty.
We continue forward. We’re here if you need support, have questions, are looking for a place, or just want someone to talk to — or listen to our music.
Before all this, I had only heard the word “pituitary.” I had no idea how much it controls in the body.
Today, I’m sharing a peaceful desert sunset — a small reminder that while life can be serious, there is still beauty, hope, and resilience.
Ka-Hoon Campground and Event Center 